Experience

I wear many hats.

A typical day for me could involve spending the morning coding a website, the afternoon mentoring a top exec at a pharma company and the evening speaking at a health event. In any spare moment I have I will be planning how I can improve resources for IBD patients or focusing on my own mental and physical health.


Advocate

Merakoi - Patient Expert (IBD), 2019-present - Providing patient insight to Pharmaceutical companies on IBD projects

Janssen Patient Advisory Committee, 2019-present - Advising Janssen Pharmaceuticals' UK management committee to have the patient perspective on key topics affecting their business

Worthing IBD Panel, March 2017-present - Member of Worthing Hospital’s IBD Patient Panel which helps to make changes to the services and care for inflammatory bowel disease patients at the hospital

Media work, ongoing - I have featured in newspapers, magazines and radio programmes to raise awareness of IBD. Featured in: The Daily Mail, Daily Online, Metro, The Daily Star, Mirror, Chat magazine, The Argus (Brighton), Worthing Herald, Shoreham Herald, BBC Sussex radio, Splash FM, UK Health Radio

I've Got Guts campaign, April 2018 - Advocate for campaign run by Bowel & Cancer Research to raise awareness of bowel conditions

Digital Healthcare & Healthy Living 2030 Task Force, 2017-2018 - A task force set up by the National Centre for Universities to explore ways necessary changes can be made for 21st century healthcare. The recommendations were published in a report called The Human Factor

IBD Unmasked, 2017 - Advisor to Marvel Comics and Takeda Pharmaceuticals to create a Marvel superhero comic based around inflammatory bowel disease

Faces of IBD, May 2016 - Award winning video campaign to raise awareness of living with IBD 

NHS People's Panel, 2015 - Supporting patient inclusion within the NHS for NHS Expo 2015


Entrepreneur

IBDrelief, 2015-present - Founder of IBDrelief, an information and support platform for people living with inflammatory bowel disease

IBD Children's App, October 2018-present - I am currently developing an education app for young people living with inflammatory bowel disease


Speaker

I speak on a range of subjects relating to patient advocacy, living with IBD and being a patient entrepreneur. Below are some of the conferences and events I've spoken at:

EyeForPharma - 17th Annual Patient Summit Europe, 2020

Partnering for Innovation Summit 2020, 2020

Royal Society of Medicine - Power of Patient Generated Data: The Patient Perspective, 2020

Beyond (Vienna), internal pharmaceutical event 2020

EMEA internal pharmaceutical meeting (Germany), 2019

Beyond (Barcelona), internal pharmaceutical event 2020

King's Fund - Emerging Technologies, 2019

Royal Society of Medicine - 19th Medical Innovations Summit, 2019

Gut Health Revolution by Zemedy, 2019

Transforming Standards of Care, 2019 

Long Term Conditions Conference, 2018

Big Bowel Event, 2017 & 2018

IBD Unmasked launch at the Takeda Pharmaceuticals national meeting, 2017

Commissioning in Healthcare, 2016

South Thames Gastroenterology SpR training day, 2016

Self Care Forum, 2015

Science Exchange - Internal pharmaceutical staff event, 2015 

NHS Expo, 2015


Mentor

Clinical Entrepreneur Training programme, 2015-present - I am a mentor for members of this NHS programme which offers opportunities for junior doctors and health professional to develop their entrepreneurial aspirations

Janssen UK, January 2019-present - Mentor to members of the senior management team to help them improve patient-centred approaches within the company


Digital consultant

Managing Director, Brightsite, June 2006-present - I founded my web design and marketing company shortly after leaving university. In this time I have worked with hundreds of clients to help them develop and grow their online presence

Behavioural Insights Team, July 2018-March 2019 - Contractor for BIT Ventures who use behaviour insights to design and build scalable products and services with social impact


Research

Food-related Quality of Life steering group member, 2017-present - Patient member of the research group looking at interventions to improve food-related quality of life for people with IBD

LUCID study, 2018-present - Patient member. A burden of illness study looking at the impact of ulcerative colitis on quality of life and productivity across Europe and the socioeconomic impact of living with ulcerative colitis

Cost of IBD working group, 2018 - Patient member. Calculating how much time living with IBD costs patients


Awards and achievements

TalkTalk Digital Hero: Healthy Living, 2015 - National award for “extraordinary people who harness technology to make life better”.

Sussex Digital Awards, 2017 - Awarded Bronze in Use of Video for Business category for ‘Faces of IBD’ campaign